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NYS Unveils New Online Service to Increase Organ Donations

New York State Unveils New Online Service to Increase Organ Donations
Originally printed at http://www.wbng.com/news/state/146854525.html

By WBNG News
April 10, 2012

(WBNG Binghamton) The New York State Department of Motor Vehicles and State Health Department on Tuesday announced that New Yorkers can now easily enroll in the State’s Organ and Tissue Donor Registry online through MyDMV.

The announcement was made in conjunction with New York Governor Andrew M. Cuomo designating April as “Donate Life Month” in New York State to honor organ donors, organ procurement agencies, and eye and tissue banks whose efforts are saving lives. A media event was held at the State Museum in Albany to unveil the new system and encourage people to register as organ donors.

This new service will reduce barriers to potential donors and increase life saving transplants. Currently, more than 2.7 million New Yorkers are registered as organ donors, but that number represents only 18 percent of the possible donors in the state. The national average is 42 percent.

“The need is great,” said DMV Commissioner Barbara J. Fiala. “More than 113,000 people in the United States are waiting for organ transplants, including almost 10,000 New Yorkers. Every day, an average of 18 people die while waiting for organ transplants in the U.S., and every 10 minutes another name is added to the waiting list. Each month, more than 40,000 generous New Yorkers sign up as organ donors through DMV. But to meet the need, we must do better.”        

“Organ donation is truly lifesaving,” said State Health Commissioner Nirav R. Shah, M.D., M.P.H. “One person who donates organs can save up to eight lives while a tissue donor can improve 50 more lives by restoring eyesight, helping fight infection in burn patients, and preventing the loss of arms or legs. Thanks to Governor Cuomo and a renewed collaboration among state agencies and stakeholders, we have created an online option that takes just a few minutes to complete, but will significantly impact the thousands of New Yorkers who are waiting for an organ donation.”

The State has also released a Request for Proposals (RFP) to select a vendor organization to assume the administration and operation of the New York State Donor Life Registry.  The vendor would lead a public-private partnership to expand the organ donor base through greater marketing and program efficiencies.  The MyDMV system will be a core component of future operations.

MyDMV, launched by the Department of Motor Vehicles last September, provides DMV customers with secure access to a variety of online services. A MyDMV account requires you to enter personal identification information that DMV can use to verify your identity to create a single, secure username and password. In addition to registering to be an organ donor, the benefits provided with a MyDMV account include changing your address, signing-up for registration and inspection renewal reminders and obtaining a copy of your driving record.

The New York State Organ and Tissue Donor Registry, or Donate Life Registry, is a confidential, computerized system that maintains a list of an individual’s consent to donate his/her organs upon death. Under State law, the registry can only be accessed to determine an individual’s donation status after death and only by a federally approved organ procurement organization or licensed eye and tissue bank. Enrolling to be an organ donor will not affect one’s medical care and/or funeral arrangements, and there is no cost to the donor’s family. Anyone over age 18 can sign up to be a potential organ donor, regardless of their medical history.

During the online sign-up process, prospective donors will be required to provide basic information found on their license or non-driver ID including date of birth, zip code, and last four digits of the Social Security number. Procedures and controls built into this process ensure the authenticity, integrity, security and confidentiality.

Organs for life-saving transplants include heart, liver, kidneys, lungs, pancreas, and small intestine. Examples of tissues that could save or enhance someone’s life include eyes and corneas, heart valves, bones, and skin grafts. Organs and tissues are distributed fairly and equitably based on medical criteria. Financial or celebrity status has no bearing on determining who receives a transplant.

Those who register through MyDMV do not need to print, sign and mail their registration application to the New York State Department of Health, which maintains the Donate Life Registry. Customers can still sign up by mail or at any DMV office. And, while most donors enroll through the DMV when they get or renew their driver licenses or non-driver ID cards, potential donors can sign up anytime.  

A special registration table will be available at GNYADA’S New York International Auto Show at the Jacob Javits Center in New York City from Thursday, April 12 through Sunday, April 15. Staff and volunteers will be on hand to help people sign up to be organ donors.

In addition to enrolling through MyDMV, New Yorkers may also enroll by mailing in a registry enrollment form available on the DOH’s Web site. Enrollment may also be facilitated by contacting a local organ procurement organization or tissue bank or by filling out a voter registration form.

The effort to increase the number of people who sign up to be organ donors has the support of  several important groups that were also represented at the announcement including the New York State Association of County Clerks; the New York Alliance for Donation and the New York State Auto Dealers Association. Celeste Sierad, a Capital Region resident who received a life-saving liver transplant, also participated in the announcement.

Paul Piperato, Rockland County Clerk and President of the New York State Association of County Clerks said, “I am proud to represent New York State’s 62 County Clerks who are advancing the Organ Donation Registry’s efforts to save lives. I hope that other New York State residents will join us in this most worthwhile endeavor.”

Victoria Adler, RN, Board Chair of the New York Alliance for Donation and Executive Director of the Lions Eye Bank at Albany said, “95 percent of people who enroll in the Registry do so through DMV. Governor Cuomo, Commissioner Fiala and Commissioner Shah are making a significant difference with coordinating their efforts to increase the number of enrollees by implementing the MyDMV portal. The membership of the New York Alliance for Donation is so thankful for the hard work that this administration, as well as so many others at the DMV and DOH have been doing to help increase donation rates.”

Rob Certilman, Chair of The New York State Automobile Dealers Association said, “What is our purpose in living if not to ultimately help our friends and neighbors? We must donate life to others in desperate need when our organs can no longer be of use to us.”

Celeste Sierad, a liver transplant recipient from the Capital Region said, “As a transplant recipient, I am thrilled that New York State and the DMV have made it easier for New Yorkers to register their decision to be an organ and tissue donor. Thirteen years ago, my life was saved because a young man decided to donate his organs when he received his first driver’s license. I know that allowing New Yorkers to sign up to be a donor online will help save the lives of the thousands of people waiting for a life-saving transplant.”

Spring has Sprung!

So, it is only March, and we had an 80 degree day yesterday.  I don't know whether to be thrilled or terrified.  I hope this isn't a sign that we will have a brutal summer.

For now, I am just enjoying it.  There is nothing like opening all the windows and letting the fresh air in, it just makes you feel healthy!

Look who already popped up to say hello!  I love the first flower of Spring!

CFCareForward Scholarship

This year marks the 20th Anniversary of the CFCareForward scholarship program that has honored young adults with cystic fibrosis (CF) as they pursue their dreams while living with a chronic disease. The program has now provided supplemental educational funding via more than 500 scholarships to students who are also challenged by the financial burden of their disease, enabling them to achieve their goals of higher education.

I was honored to receive a CF scholarship in college that eased the financial burden, and am thrilled to spread the word to other individuals with CF who could benefit from this wonderful scholarship program!

 To celebrate the 20th year of the Scholarship, two $20,000 scholarships will be awarded to one undergraduate and graduate student for use during the 2012-2013 academic year. Forty students will be awarded a $2,500 Scholarship based on their achievements, essay and creative presentation submitted with the application. These students will then go on to compete in an online public voting contest to be named one of this year’s two Thriving Students.

 Applications will be accepted until April 17, 2012 and are available online now at: www.CFCareForwardScholarship.com/apply.


 About CFCareForward: Abbott is honored to continue the nearly 25-year commitment of helping people with CF manage their health. The CFCareForward program provides comprehensive nutritional, educational and financial support for patients living with CF and their families. To learn more about CFCareForward, please call 1-855-CARE4WD (227-3493)

I am so Behind!

So, how much more behind could I be?  I am so sorry that I lose time and don't post.  When last I wrote, I explained the whole story of how we ended up booking Jason Dunn to come to Olean.  Well, we recently secured a second venue at the Bethany Lutheran Church here in Olean, for Saturday, April 21.  This one is an all ages show, and we are hoping several families will come.  If you live close by and would like to have a great evening, check out the website: www.jasondunnislgd.blogspot.com for tickets and more info.

I have to tell you what I loved about the Lutheran Church's response to our invite for churches to sponsor this event.  Their Pastor contacted us and expressed their interest, and when I spoke with her, she acknowledged that their church's demographic may not be really interested, but they felt this was a great outreach program.  Isn't that how it should be, welcoming people who aren't necessarily just like us into our lives?  Her response eased my fear that maybe this wasn't God's plan at all, but our human desire.  I can't tell you how thankful I was for their truly selfless offer to serve!

We spent the last two days in Pittsburgh at appointments.  It has been decided that my most recent rounds of illness have been caused by Bronchitis.  Great, I go from Pseudomonas to Bronchitis!  Dr. Pilewski will be keeping his eye on this.

We did have a scare while at our visit.  In the middle of our appointment, Dr. Pilewski got an emergency message about a gunman being on the loose in the hospital next door:


UPMC officials have released some information about the people who were wounded in a gunfight today at Western Psychiatric Institute and Clinic.


Seven people are expected to survive injuries they suffered after a gunman entered the lobby of the clinic and opened fire. One person died, and the suspected gunman was killed by bullets fired by University of Pittsburgh police.


Read more: http://www.post-gazette.com/pg/12068/1215395-100.stm#ixzz1uJPD03JX


It is frightening to know something like that is happening right next door.  Please pray for the victims of this shooting.


We are home safe, and are now preparing for all of the St. Patrick's Day shows coming up this week; what a crazy, yet fun, time of the year this is!

My love and blessings to you all!  Nancy