Welcome friends and family!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
Monday, June 30, 2008
Tonight I would like to encourage you to think about becoming an organ donor if you are not already one. Until I needed lungs, I have to be honest, this was not something I spent much if any time thinking about. I recently checked my Driver's License to see if I had designated myself as a possible donor and was shocked to realize I had not. I immediately added this to my Living Will and made sure my family knew my desire to donate any organs or tissues that could be used if something were to happen to me.
None of us likes to think about this, because it means we have to acknowledge our own mortality, but the fact is, we are all going to die eventually. Do you have the courage to allow your death to change the lives of others? What a beautiful gift organ donation is and I would ask you to at least consider adding it to your license.
If you don't have a current Living Will, Power of Attorney, or Health Care Proxy, I would also encourage you to set up one or more. That is a gift you will give your loved ones to let them know your wishes if you are unable to speak for yourself.
I so appreciate you at least taking a moment to think about this option, it is a purely personal decision that only you can make.
All my love! Nancy
Saturday, June 28, 2008
I have a lot of updates to give you today. We returned from Pittsburgh last night. It was a good trip. We have decided that I was having a bad allergic reaction to the inhaled Fortaz antibiotic and that is what was causing me to feel so poorly last week. We have discontinued that for now and are holding on IV antibiotics to see if I will continue to feel better without breathing that in. Though my white cell count was elevated, I do not have pneumonia, thank you God!
There has still been no movement on the list. According to Dr. Pilewski, if I was 6 ft. tall I would be golden, but unfortunately, I need smaller lungs. At this point, we will not return until August, unless things change on the list.
Julie's surgery went well. She received three new organs: a stomach, pancreas, and small bowel. She was awake 5 hours after her surgery ended which is quite amazing. According to her mom she is doing well and I saw a picture of her taken yesterday.
Scott and I made our trip a celebration of our 12 year wedding anniversary which is tomorrow. We enjoyed our time alone, we haven't had much alone time in a while.
Finally, I wanted to share pictures of Hannah on her last day of school (with a brand new haircut, too!). She is now officially a 4th Grader, Oh my!
I am hoping I will have some pictures to share from the Music in the Park shortly. What a wonderful evening that was. I am not sure what the grand total raised that evening was, but it was a lot more than any of us expected. What a wonderful community we live in! More to follow on this later.
Love to you all! Nancy
Wednesday, June 25, 2008
The weather looks like it will be beautiful for Music in the Park this evening. I am not sure if I will feel up to attending, but Hannah and my mom will definitely be there.
Dr. Pilewski is planning to re-start the IV antibiotics, so I am awaiting a plan, whether it be to try to start them here today or tomorrow in Pittsburgh. Scott and I will leave tomorrow morning for Pittsburgh and hopefully return home on Friday, unless I need to be hospitalized.
Thank you all for your wonderful prayers! All my love! Nancy
Monday, June 23, 2008
I hope you all had a wonderful weekend! I have to admit, I have been struggling. I feared that once my IV antibiotics got out of my system I might have a hard time and I guess I was correct.
I am trying to keep my chin up and follow my own advice, to just take things one day at a time. Scott and I travel to Pittsburgh on Thursday to see Dr. Pilewski, maybe there is something that can be done to help me feel a little better, I can't continue to be on IVs forever. Please pray that my body can stay strong and I can fight off infections on my own without the IV antibiotics.
Thank you all so much for your love and continued prayers! Nancy
Friday, June 20, 2008
Wednesday, June 18, 2008
Monday, June 16, 2008
Saturday's benefit was a huge success! It was wonderful to see so many people coming out to support me and my family. I was thrilled to be able to attend for some of the time! Over $7000 was raised. God bless you all!!!!
Thank you so much to everyone who made donations, who bought my book, and who came to support us. If any of you have pictures you would like to e-mail me, I would love to post them. These are some of the pictures my dad took that day.
I want to say a very special thank you to Ruth and Amy for planning and putting together such an awesome event! I am so blessed to have such wonderful friends.
I would also like to thank:
Uncle Tom & Aunt Debbie Weatherell (Mickey's) for the wonderful Pork BBQ dinners!
Aunt Judy Bell for her help in coordinating donations and baskets.
Jon and Catie Farleo for coordinating the 50/50 Raffle.
Keith Miller for donating all of the beautiful flower baskets and flats.
Sysco (and especially Rob) for donating food for the event.
Rick, Angie, and Grace Emley for their terrific music (you guys rocked!)
Katie Duggan and the Olean Irish Dancers for their wonderful performance!
Josh, for driving all the way from Penn Yan to DJ.
Thank you, also, to all of the people who donated their time to help with selling raffle tickets, working the food table, and helping in the kitchen!
Sunday was a day of much needed rest! We celebrated Father's Day with Scott and my dad and enjoyed a special family dinner with my mother-in-law, Gail, and Leslie, Jeff, Lydia, and Simon Szymanski (Scott's sister and her family).
Happy belated Father's Day to all of you Dads! You are wonderful, special, and loved dearly!
All my love! Nancy
Friday, June 13, 2008
I am getting very excited about tomorrow's benefit. I never dreamed I would be home to be able to attend. For those of you who are hoping to see me at the benefit, I am hoping to be there from 12:00 to 2:00, then I will need to go home and rest, I hope to return around 5:00 so I will be able to see the Irish Dancers at 6:00. Of course, everything will depend on how I feel.
I want to say a special thanks to Ruth and Amy for organizing the event. I know so many of you have helped and I appreciate it so much! I hope I will get to thank you all in person at some point! I am greatly blessed to have so many "old" and "new" friends! Nancy
Thursday, June 12, 2008
See all the fun I was missing in Pittsburgh? I have started a new inhaled antibiotic to hopefully keep my lungs infection free without the IVs. The only negative to this new drug is that is smells and tastes like cat pee (or at least what I imagine cat pee would taste like). Lucky ME!
Hope you are having a great day today! Nancy
Wednesday, June 11, 2008
Here are the pictures I promised. Unfortunately, Hannah got sick last night and is still not feeling well. We think she has strep, so she will be starting on antibiotics. I have been spraying a lot of Lysol and am sure glad to have Grandma and Granddaddy here to help out.
It has been so wonderful being at home. There truly is no place like home!
Love to you all! Nancy
Tuesday, June 10, 2008
I spent today resting, I am very tired, but it feels so good to be home, even if it is only temporarily.
I will keep you informed of any changes in my transplant status.
All my love! Nancy
Friday, June 6, 2008
My coordinator, Paul, will contact me as soon as the other person is transplanted and if, per chance, that happens this weekend, we will stay put. If not, I will at least get a little time at home with Scott and Hannah. who knows, maybe I will even be able to attend the benefit next weekend, wouldn't that be wonderful!
I will let you know if anything changes, but if not, I hope you all have a wonderful weekend.
All my love! Nancy
Thursday, June 5, 2008
I will be ending IV antibiotics tomorrow, as well, which is also a little nerve wracking. I am hopeful my body can continue to fight without them, because I can't continue to be on them indefinitely.
I am going to try to put this big decision in God's hands. Hopefully I will be able to get more information on Angel Flight tomorrow. I will keep you posted.
All my love! Nancy
Just a quick update. I have an appointment at 4:00 with Dr. Pilewski, so I will have more to share this evening. Yesterday was another good day at rehab., still no bleeding, but I was worn out when we got home.
We just got proofs of Hannah's Spring school pictures, I thought I would share.
I also wanted to say Happy 10th Birthday to my niece, Amber! I love you sweetie!
I hope you're having a great day! Nancy
Tuesday, June 3, 2008
I have spoken of my new friend, Julie. I wanted to post her picture because she needs your prayers. She has been really struggling. Thursday she has an important test that will determine whether she will be able to have the transplant she so desperately needs. Please, add her to your prayer list if you haven't already. She needs good news on Thursday.
Thank you for your continued prayers and love! Nancy