You've Been Given the Gift of Life, Give it Back!

Welcome friends and family!

Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!

It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.

If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.

My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.

Please feel free to contact me with questions or feedback, I would love to hear from you!

I hope I can help you to experience the love God has for each and every one of us!

May God Bless You with Miracles in Your Life! Nancy


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Tuesday, September 15, 2009

Good Morning!

Hello friends!

It is hard to believe we are already midway through September. The days are feeling more like fall and the trees are starting to turn. I love the fall, everything about it! I am trying to get the house straightened up so I can bring out the fall decorations. I love them almost as much as my Christmas decorations! There is a large pumpkin patch in the field in front of our house and Hannah has already picked several beautiful pumpkins. My life is so filled with blessings and joy!

We survived our first trip to Buffalo for Hannah's Irish dance lessons. The class she went to Sunday was not advanced enough, so this week she will be attending a more advanced class. It was quite overwhelming reading the packet on the way home in the car, but this is what she loves and we are prepared to commit and support her passion.

I took Hannah for her flu shot last week and learned that for 6th grade she will need two more Chicken Pox vaccines. Of course these are live virus vaccines, so I was quite concerned about how we would handle this (I was told I may have to move out of the house for up to 6 weeks, having no contact with Hannah during this time, TORTURE!!!!). I spoke to my transplant coordinator yesterday and she told me I would not have to move out, but would not be able to have any physical contact with Hannah for 2 weeks after each shot, better, but still TORTURE!!!! I also asked about the Swine Flu vaccine, which it sounds like will be a live virus vaccine as well. She informed me that for a transplant patient, regardless of getting a flu shot or not, there is still a 50% chance of getting the flu, so, once flu season kicks in, I will be very restricted and will have to get used to wearing masks out in public all over again. Not the best news, but if that is what it will take to keep me healthy, I will gladly do it.

Finally, a quick update on Cammi. She continues to improve slowly. She is doing much better now that she has the trach. They have removed two of her chest tubes which is a great sign that the fluid in her new lungs is draining. Please keep praying!

All my love! Nancy

2 comments:

Jamie said...

First off. . . I am more excited about the New Moon movie than probably anyone I know! I LOVED all the books~

Also Thanks, once again your kind words mean so much to me. I was so happy when your recovery went so smoothly. I am super excited you are almost one year out. . . and I am almost 2yrs. I had PFT's today and my FEV was 105% I won't complain about that :)

Becky said...

OMIGOSH! Chicken Pox Vacs are required now???????????????????

I thought they were all optional. Hoping and praying for you during this stressful time. Hoping that you and Hannah stay healthy...oh yeah and Scott too! :)

The Miracle of Transplantation

Pause the music player before watching.