Have you ever had one of those days where every little thing makes you cry? That has been today for me. I am not sure if it is the increased medications or if I am just having an emotional breakdown. Thank God I am a woman, people probably just think I'm hormonal or pre-menstrual, or both!
I thought I would let you know the plan. I started on Cipro (antibiotic) and Cellcept (anti-rejection) on Friday. Yesterday, I started a prednisone taper starting at 100 mg and working down. Hopefully today I will be able to get inhaled TOBI from the pharmacy (another antibiotic) and get started on that. I thought my pill minder was full before, now it is overflowing! Please God, let this work!
I am feeling very run down, probably a mixture of the rejection and the infection. It is scary to feel like this again, it has been a while.
Keep those prayers coming, we all KNOW they work!
My love and thanks to you all! Nancy
Welcome friends and family!
Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
Please feel free to contact me with questions or feedback, I would love to hear from you!
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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The Miracle of Transplantation
Pause the music player before watching.
3 comments:
We're praying, Nancy! Please call if we can help in any way. I'd be happy to take Hannah to any of the upcoming Irish dances.
I hope it all works too. . . I would bet your 100mg of prednisone is your culprit for the emotional roller coaster ~ that's pretty tough stuff and compared to the 5mg you were on.. . . When I had my infection and was hospitalized last year, I felt really lethargic. NO ENERGY~ I just wanted to sleep. So you're probably spot on with that. This too will pass :) I am glad to hear they do not have you in the hospital though! Please keep us updated. You are ALWAYS in my prayers. Love ya!
Nance,
I hope you take this time to rest! I hope the new medications will make you feel better and stronger each day! We are praying diligently for you and hoping that you will recover from this bump!
You are amazing! I love you and wish I could be there to give you a HUGE hug! Hang in there my dear!
I love you!
Debbie
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