Applications Now Available for CF Sibling Teen Advocacy Day, June 23-24, 2010
Brothers and sisters of those with cystic fibrosis know first hand how CF patients struggle daily with their disease and how important it is to quickly develop promising new treatments and therapies.
That is why the Cystic Fibrosis Foundation invites all teenage siblings of CF patients to apply for participation in CF Sibling Teen Advocacy Day in Washington, D.C. on June 23-24, 2010. Because the risk of cross-infection precludes us from bringing a large contingent of teens with CF to Capital Hill, we ask their teenage siblings to come to our nation's capital and lobby on their behalf for policies that make a real difference to the 30,000 children and adults who struggle with CF every day.
To take part in Teen Advocacy Day, participants must be between the ages of 12 and 18 and have a sibling who has cystic fibrosis, and must be accompanied by a parent. Space is limited, and applications will be considered on a first come, first serve basis. Please contact Stephanie Krenrich, (301) 907-2512, at the CF Foundation's National office for more information.
Welcome friends and family!
Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
Please feel free to contact me with questions or feedback, I would love to hear from you!
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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The Miracle of Transplantation
Pause the music player before watching.
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