Help Push the Clinical Trials Bill Over the Finish Line: Visit Your Representative in Your Community
YOU can help more people participate in CF clinical trials, increase awareness of CF, and foster relationships between members of the CF community and Congress by signing up for Make Every Breath Count, the CF Foundation’s third annual national advocacy campaign. Once you register, your State Advocacy Chair or a Foundation staff person will give you the tools and support you will need to meet with your members of Congress.
On Thursday, June 24, two dozen teens from all over the country came to Washington, DC to advocate on behalf of their siblings, cousins, and friends with cystic fibrosis.
Thanks to the combined power of your efforts and the advocacy of these teens, 14 additional members of Congress signed on to cosponsor the “Improving Access to Clinical Trials Act” within days of the event, with more working to join the legislation soon.
Your calls, emails, letters, and meetings are working! Please keep up the pressure by:
Registering for the Make Every Breath Count campaign.
Calling and writing your senators about the clinical trials bill, and, ask your friends, family, and co-workers to do so as well!
You can help ensure new therapies for CF and other diseases move swiftly from the research stage into the hands of patients who need them.
Thank you for your support!
Mary B. Dwight
Vice President for Government Affairs
Cystic Fibrosis Foundation
(800) FIGHT CF
publicpolicy@cff.org
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