SAVE THE DATE for the GREAT STRIDES fall walks on Saturday, September 18!
Join us in the Ellicottville Park Square or St. Mary's Episcopal Church at 99 Wildwood Ave in Salamanca. Check-in for the Salamanca walk begins at 10:00 AM, with the walk kicking off at 11:00 AM. Ellicottville check-in begins at 11:00 AM, with the walk commencing at 12:00 PM.
Register yourself and your team HERE and start your online letter writing campaign! If you need help, please contact the CF Foundation office at (716) 204-2535. We are happy to help with anything you need!
RISING STARS
The Cystic Fibrosis Foundation of Western New York is proud to announce the launch of the "Rising Stars" young professionals initiative. This is an exclusive group of young professionals ages 25-40 who are "rising stars" and can apply the success, leadership, and passion they exude in their careers to help us find a cure for cystic fibrosis.
If you are interested in helping out with this great new event or you would like to nominate someone you think is a "rising star", please contact Bonnie at bbarone@cff.org or (716) 204-2535.
CYSTIC FIBROSIS BENEFIT
Stop by the Cattaraugus Firemen's Club on Saturday, August 14th for an amazing cystic fibrosis benefit! There are a number of events taking place with proceeds benefiting the Cystic Fibrosis Foundation!
Kicking off the day is a Motorcycle Dice Run. Registration begins at 11:00 AM at the Cattaraugus Firemen's Club. The ride leaves at 11:30 AM and returns to the club at 3:00 PM. The ride is $10 per person and more information is available by contacting Don Burke at (716) 532-2169.
There are also a couple of fun tournaments to get involved with! A horseshoe tournament begins at 5:00 PM and is $5 per player. Also at 5:00 PM, a volleyball tournament will be held and costs $30 per team. More information about the horseshoe tournament is available by contacting Ron Dimpfl at (716) 257-9544. For more information about the volleyball tournament, contact Tracy Cooper at (607) 423-5119.
How about putting "a dent in CF?" There will be car bashing available for $2 per hit. More information can be obtained from Kyle Harris at (716) 257-5896.
A Chinese Auction is also being held at the Cattaraugus Firemen's Club. Tickets will be pulled at 6:00 PM and you must be present to win. For more information or to donate items for the auction, please contact Sara Green at (716) 257-3520, Heather Harris at (716) 307-7806 or Tammy Brooks at (716) 257-5975.
Finally, there will be kids game and activities from 4 - 6 PM and music by Chance Robertson's sound system from 8 - 11 PM!
HELP WANTED!
The CF Foundation office is looking for interns for the fall. Interested students can be in either high school or college. If you are interested, please contact Kelly at kkopra@cff.org or by calling the CF Foundation office at (716) 204-2535.
Welcome friends and family!
Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
Please feel free to contact me with questions or feedback, I would love to hear from you!
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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The Miracle of Transplantation
Pause the music player before watching.
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