You've Been Given the Gift of Life, Give it Back!

Welcome friends and family!

Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!

It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.

If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.

My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.

Please feel free to contact me with questions or feedback, I would love to hear from you!

I hope I can help you to experience the love God has for each and every one of us!

May God Bless You with Miracles in Your Life! Nancy


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Wednesday, October 6, 2010

A great weekend in Pittsburgh!

I didn't get a chance to let you know that we were headed to Pittsburgh on Friday.  We had a busy few days there starting Saturday morning with a Halloween Feis (pronounced like Fesh = Irish Dance Competition).

Everyone was encouraged to wear their Halloween costumes, even to dance in, so we had fun designing a monarch fairy costume for Hannah.


Scott decorated her eyes, they turned out GREAT!


Yes, I also dressed up.  I used my costume from last year, but instead of being a witch, I was a vampire (I didn't want to deal with the witch hat.)


We purchased a plain black leotard and I used iron on gems to create the design.  She got TONS of compliments on her costume!


When we first arrived at the Feis, Hannah and I didn't see anyone else in costume.  All the girls were dressed in their Irish Dresses.  I was glad for Hannah's sake that I was in a costume so she didn't feel too silly.

As more and more dancers arrived, we began to see lots of costumes, which made Hannah very happy.  Was their one other adult in costume, however? NO!!!  I got a lot of crazy looks.

My feeling, loosen up everyone, it is a Halloween Feis, dress up and have fun!

Though Scott would not walk with me, he was too embarrassed, I felt like I had come through for my child and made it more fun for her, and isn't that all that matters?


Wasn't she adorable?


It was a VERY successful Feis for her.  She swept all of her soft shoe dances with 4 firsts!  She has never accomplished this before, so we were very pleased.



On Saturday evening Scott and I attended the 30th Anniversary of my Transplant Center.  Some good friends of ours took Hannah for the evening.  We had a lovely time.  I finally got to meet a good friend, Brenda, who is also a CF transplant recipient who has done amazingly well.  It was a joy to finally meet her.  I also got to meet my doctor's wife and see my surgeon.  It was a terrific evening!


We also had a lot of downtime on Sunday to just relax together!


On Monday I had my doctor's appointment and Pulmonary Function tests.  My PFTs continue to be great with an FEV1 of 106%.  I had a bronch yesterday and am feeling awful today.  The lung biopsy was negative for acute or chronic rejection.  There was narrowing in one airway that was treated with laser and balloon dilatation.  There were also some secretions in the Right lower airways, so we are waiting to see what the cultures show.  Please pray there is no infection.  

2 comments:

Jamie said...

The transplant dinner is fabulous! We were able to attend it a couple years ago and we wanted so badly to have been able to go this year! I am glad you got to go.

I have met Brenda she is a ball of energy for sure :)

I love the vampire costume. . .just shows you're still a fun mom!

Much love~
Bryan and Jamie

Cammi said...

Hannah - YOU ROCK! Awesome job on all the 1st place awards. Love your costume! Nancy - you are a devoted mother to dress up with her...good for you!

I'm so glad you were able to attend the transplant dinner. I really wanted to go to that! Bummer about feeling awful after your bronchoscopy. YUCK. Sometimes it feels like they just stir things up in there! I will pray for no infection and for a quick healing from the discomfort. I will call this week - would love to catch up! Miss you guys!

The Miracle of Transplantation

Pause the music player before watching.