You did it! Both the House of Representatives and Senate have passed legislation that includes the Expanding and Promoting Expertise in Review of Rare Treatments (EXPERRT) Act.
Now, let’s say thanks!
Thank your members of Congress for supporting the EXPERRT Act.
The EXPERRT Act will make it easier for the FDA to access outside expertise needed to understand the science behind new drugs intended to treat CF and other rare diseases. It passed because advocates like you reached out to your elected officials to show how important the EXPERRT Act is for people with CF.
Thank you again for your help and determination! Together, we are making a difference for all people with CF.
Sincerely,
Mary Dwight
Vice President for Government Affairs
Cystic Fibrosis Foundation (800) FIGHT CF publicpolicy@cff.org
Welcome friends and family!
Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
Please feel free to contact me with questions or feedback, I would love to hear from you!
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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The Miracle of Transplantation
Pause the music player before watching.
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