A Day in My Life at Family House

Just in case any of you are worried that I am bored here at Family House, I thought I would ease your mind with a day in my life.

9:00 a.m. Drag out of bed to do IV therapy, my breathing treatments, and my VEST.

9:45 a.m. Breakfast downstairs in the Dining Room.

10:30 a.m. Another IV treatment.

11:15 a.m. Bath and an attempt at washing my hair by kneeling in the tub and running my head under the sink. (While on IVs I can't shower.)

12:00 p.m. Lunch.

12:30 p.m. More respiratory treatments.

1:00 to 3:00 p.m. Rest Time.

3:00 p.m. Another IV treatment.

4:00 p.m. If the weather is nice, we try to sit out on the front porch and read until dinner.

6:00 p.m. Dinner.
6:30 p.m. IV therapy.

7:15 p.m. Breathing treatments and VEST again.

9:00 p.m. IV therapy.

10:00 p.m. Bedtime!!!! Start my feeding tube treatment (that runs through the night).

2:30 a.m. IV therapy.

3:15 a.m. IV therapy.

9:00 a.m. It starts all over again! See, nothing boring about my day! : - )

Thursday, May 15

I had an appointment with Dr. Pilewski this afternoon. It went well. We decided to continue IV therapy for at least another week. He is such a wonderful man and started the appointment by apologizing that I didn't have lungs yet. Can you imagine? That is just the kind of caring person he is, I am very lucky!

Hannah and Scott come tomorrow, hooray!!!

Love to you all! Nancy