You've Been Given the Gift of Life, Give it Back!

Welcome friends and family!

Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!

It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.

If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.

My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.

Please feel free to contact me with questions or feedback, I would love to hear from you!

I hope I can help you to experience the love God has for each and every one of us!

May God Bless You with Miracles in Your Life! Nancy


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Thursday, May 15, 2008

A Day in My Life at Family House

Just in case any of you are worried that I am bored here at Family House, I thought I would ease your mind with a day in my life.

9:00 a.m. Drag out of bed to do IV therapy, my breathing treatments, and my VEST.

9:45 a.m. Breakfast downstairs in the Dining Room.

10:30 a.m. Another IV treatment.

11:15 a.m. Bath and an attempt at washing my hair by kneeling in the tub and running my head under the sink. (While on IVs I can't shower.)

12:00 p.m. Lunch.

12:30 p.m. More respiratory treatments.

1:00 to 3:00 p.m. Rest Time.

3:00 p.m. Another IV treatment.

4:00 p.m. If the weather is nice, we try to sit out on the front porch and read until dinner.

6:00 p.m. Dinner.
6:30 p.m. IV therapy.

7:15 p.m. Breathing treatments and VEST again.

9:00 p.m. IV therapy.

10:00 p.m. Bedtime!!!! Start my feeding tube treatment (that runs through the night).

2:30 a.m. IV therapy.

3:15 a.m. IV therapy.

9:00 a.m. It starts all over again! See, nothing boring about my day! : - )

Thursday, May 15

I had an appointment with Dr. Pilewski this afternoon. It went well. We decided to continue IV therapy for at least another week. He is such a wonderful man and started the appointment by apologizing that I didn't have lungs yet. Can you imagine? That is just the kind of caring person he is, I am very lucky!

Hannah and Scott come tomorrow, hooray!!!

Love to you all! Nancy

3 comments:

Blomquist Blog said...

Just another example how you truly AMAZE me! Enjoy your time with your hubby and beautiful daughter. I love you!

Love,

Debbie

Amy Deahr said...

Wow Nancy,
It takes a special kind of person to have such stregth and the ability to smile through it all. Have a wonderful weekend. Tomorrow is almost here!!! It must feel like Christmas eve!
Lots of love and hugs,
Amy

Deb said...

Hey, Nancy,
Well, by now you're enjoying the company of your family. I'm sure it's a wonderful feeling. I'm so glad they're there with you this weekend. (Have you stopped hugging Hannah?) I can't help but think you're surmising the idea of camping. After reading what your day entails, please don't camp. Instead, have Scott and Hannah set up camp in your apartment. (Good thing I'm not there to direct things.)
Thinking of you and praying ever so strong...
Love you, my friend!
Deb

The Miracle of Transplantation

Pause the music player before watching.