Hello!
A quick update. We saw Dr. Pilewski this morning at 10:00. I am still really struggling, but there may not be much that can be done. At this point, we have thrown the top antibiotics at me and there still hasn't been an improvement, so this may just be my new baseline. I had kind of come this this realization on my own, but needed him to reinforce it so that I could totally wrap my head around it. And we fight on.
We decided to stay here in Pittsburgh one more night since the trip down took so much out of me and I am glad we did, I was able to get a long nap in a bed (not the car) this afternoon while Scott enjoyed the beautiful Pittsburgh weather on a long walk.
I also got to meet my teammate on this quest for lungs, Cammi. Scott and I drove by their rental home and we chatted from a safe distance, me in the car, her in her driveway. I will talk more about this in another post, but for me, this was by far the highlight of my Pittsburgh trip!
Well, I am still exhausted and we need to discuss dinner, so I will go for now. Look for another update tomorrow! Nancy
2 comments:
Hi Nancy!
I am sorry that there was not bigger and better news for you. You will most definitely keep fighting on because you are the biggest and most amazing fighter there is! Keep your head up, keep that smile glowing, and stay strong!
I am so glad that you got to meet Cammi! You guys must be great sources of inspiration to each other! What a great moment for both of you. I hope she will share her story with us too. We will keep you both in our thoughts and prayers.
Nance, you are amazing and we are so blessed to know you and call you our friend. You need to keep the faith and hang in there. I know you will try your hardest. You mean the world to me....I love you and I will continue to pray for your healing!
Love you,
Debbie
Hey, my friend,
I just wanted to post to let you know you continue to be ever so close in my heart and prayers. I know you're struggling. I hope you can feel the love and prayers that surround you; I hope they bring you a peaceful feeling.
I love you!
Deb
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