I have decided there should be a law against feeling this lousy first thing in the morning. I think I should at least get one hour of neutral time, don't you? I spoke with Dr. Pilewski yesterday and my sputum is now growing pseudomonas. This is another infection like the Cepacia that causes trouble for those of us with CF.
(Pseudomonas aeruginosa is the main cause of infection and lung damage in people with cystic fibrosis. Pseudomonas aeruginosa are bacteria that are common in the environment. Pseudomonas aeruginosa is especially important in people with cystic fibrosis since it is the bacterium responsible for most lung infections. Repeated lung infections from Pseudomonas aeruginosa are the leading cause of decreasing lung function in people with cystic fibrosis.)
I should be starting a new IV antibiotic today and I started Levaquin yesterday. Please pray these will work!
I woke up to a beautiful snowy ground cover, all the more reason to move back to Pittsburgh, I would hate to think of missing an opportunity for lungs because I was snowed in.
Please have a wonderful Monday and know that you are in my heart! Nancy
8 comments:
Good Morning Nancy!
You are right, there should be a law against feeling so lousy for so LONG. You deserve much more than an hour, although I know you would rejoice with an hours time of feeling "good." You deserve so much Nancy, and we all know that in God's good time, you will be able to rejoice in feeling so good with your new lungs. Yes, it will be an uphill battle, but you have proved over and over again that you can CONQUER anything that God gives to you. I am sure it is getting tougher to keep positive and keep your focus on the "big" goal ahead, but we all need you, so we need you to continue being YOU! I hope your new antibiotics brings you some relief.
The snow is a beautiful sight! Here's wishing you a warm filled day both inside your heart and out! I love you Nancy Ann! Hang in there my dear and forever friend!
Love,
Debbie
Nancy,
I hope all goes well with the search for an apartment in Pittsburgh. I am so sorry to hear of your decline in health. You are in my heart and it is always so nice to see your smiling face, however, it becomes deceiving in how truly unhealthy you are. You are a wonderful inspiration to a lot of people who are following you and your daily struggle for a good day. We think of you often and have tons of people pulling for you.
Susan
Hi Nancy,
I requested prayer for you at our Bible Study last night. So know that you have folks from all over who are praying for you!
We're praying these new antibiotics work to help strengthen your body so you can feel good and so you're ready for new lungs... SOON! We'll also be praying the move goes well and you find just the right apartment in Pittsburgh.
The pictures of the snow are beautiful!
Feel better soon.
Love in Christ,
Jennifer
Nancy,
The snow is beautiful. I miss snowy mornings. I am praying that the new antibiotics work so that you can feel better. You deserve to feel so much better and I wish you a day of feeling good soon!
Lots of love and hugs,
Amy
Nancy,
I hope all is well, I have missed you the last couple of days, and wanted you to know we are praying for you and concerned for you.
Susan
Nancy,
I hope all is well, I have missed you the last couple of days, and wanted you to know we are praying for you and concerned for you.
Susan
Id like to say that I missed the snow but ummm no. I like to look at pictures and then pier outside to see my leaf covered yard and 50 degree weather.
Nancy dahling--I pray that the antibiotics do their trick and that you have some more good days at home before the move back to Pittsburgh. Bless you and your family. ((HUGS)) to all!
Bec
PS...was looking through our HS annuals the other day. ROFLOL---found an especially sexy looking one of Deb, I think it was BBall, she had the most startled look on her face. Isnt it hilarious to look back??
Hi Nancy!
We're alwyas thinkin of ya and sayin prayers. I just wanted to send you a smile, a hug, and some sunshine. I miss you! Take care sweetie.
much love,
amy and davin
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