Hello friends!We returned from Pittsburgh yesterday, but I have been too exhausted to post. It is amazing how tired I get just riding around in a wheelchair!
We had a good couple of days. My appointment went well. I will remain on the current IV medication for another week, then we will switch to a new antibiotic we haven't tried before to see if I can ward off another lung infection. I was also able to get some pain medication to help with the constant pain I am experiencing in my chest. That has helped me get to sleep at night, which I am thankful for.
According to Dr. Pilewski, I am now first on the list for our region. UNOS is separated into 11 different regions, UPMC's region includes Pennsylvania, Delaware, Maryland, and West Virginia. So, if lungs my size and type become available in this region, I will have first dibs. I think that is a good sign, but we'll see. I will return to Pittsburgh on September 11, unless I get that miracle call.
I was able to catch up with my friends at Family House including Julie and Mary Trahan. Julie looks wonderful! Unfortunately, I didn't have a camera, so we had to make do with a cell phone picture, but at least you can get an idea of how great she looks.
We completed all of Hannah's school shopping, hooray! It is hard to believe they start school in a little over a week, where did the summer go?
I hope you all had a wonderful weekend! Thank you for your continued prayers! All my love! Nancy
6 comments:
Hi Nancy!
That is wonderful news that you are now number one on the transplant list. Your new lungs are right around the corner! I am so happy to see that you got to visit your friend Julie. You have been such an inspiration to her and many others so I am sure she was so touched to see you! My mom sends her love as well. She is here until Thursday and we have had so much fun moving into our new house. My dad left today and made it back safe and sound! We think of you daily and the kids say extra prayers for you during Grace at dinner! We love you and are so thankful for all you have done to inspire us and make us better people. The world is truly a better place with you in it! I hope the antibiotics continue to work for you and give you some good relief so you can rest. Our love to you all!
Love,
Deb and Family
Wonderful news! Yae! First on the list, we are all praying!! I'm glad you were able to do the school shopping with Hannah, those days just go by way too fast! The picture of you and Julie is fabulous. She looks sooooo good! I'm glad you were able to see her as well! Well friend you are so amazing! We are praying! Give your mom and dad a hug for me! Love on that Hannah before she gets to head off to school! Praying for you all, and that miracle call!
We love you!
MaryBeth
Hi Nancy,
You both look wonderful. Julie really does look like a whole new person. It's just amazing. I am so excited that you are now 1st on the list. You are getting closer and closer to that great day. We continue to pray for that call and for your family.
Lots of love, hugs and prayers,
Amy
Nancy! I am so glad to see you post!!! Julie looks amazing!!!! I am sooo excited for her!! And you look pretty great sitting there next to her as well!! Wow, I bet it was a fantastic visit!
Hate to say this, but it is embarking on a holiday weekend, so I am praying your lungs are within reach. And top of the list is a good place to be.
We love you and cant wait to hear the miracle call!!
So glad to hear you had a great trip and arrived home safely. It sounds like a great visit with good news! I bet it was a big lift to see Julie and how good she looks. We have you in our prayers and will hope to see the blog soon that syas you received the call!! Love to you and yours,
Angela
I'm so glad you made it home safely. We'll pray that Dr. Pilewski's choice of antibiotics will be the right combination for you. I'm so happy you were able to get something for the pain - there is just no reason to suffer any more than necessary. I'm glad it's helping you sleep better.
Thank you SO MUCH for updating us on Julie. It's so nice to see a happy story and to be able to pray for her and wish her well. She looks SO MUCH IMPROVED in her photo. Wow, what a miracle.
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