Hello! We got home from Pittsburgh yesterday afternoon. Between the humidity and the travel, I am shot, but am glad we had another safe trip!
I wanted to introduce you to Kelly. She is the nurse coordinator at Dr. Pilewski's office and she has been SO GOOD to me! I have had the good fortune of having wonderful nurse coordinators, like Carol Wood during my Salt Lake days and my good friend Jeanne Smith at Women and Children's Hospital in Buffalo. I don't know if these ladies always get the credit they deserve, but they are the ones who have really kept me going all of these years and they deserve so much thanks and credit for a job WELL DONE!
I was hoping to be able to post a picture of Dr. Pilewski, but due to scheduling conflicts, I was only able to see him briefly on Thursday. Hopefully next time I can share his picture with you.
I was only able to see Julie for a few minutes yesterday morning before we left. She is hanging in there and it was good to see her and her mom!
I hope you all have a wonderful weekend. I will check in on Monday when I have news about the updated labs.
All my love! Nancy
Welcome friends and family!
Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.
If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.
Please feel free to contact me with questions or feedback, I would love to hear from you!
I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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I hope I can help you to experience the love God has for each and every one of us!
May God Bless You with Miracles in Your Life! Nancy
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The Miracle of Transplantation
Pause the music player before watching.
3 comments:
Hey, sweet friend,
So glad you're home again. I know you need to venture off to Pitts. for testing and such, but I know you're much happier being home. I like you happy.
The picture slide shows you've been creating are wonderful. You need to teach me how to do that (after your double lung transplant, of course!). I'm sure you're exhausted after the long trip. It's okay to rest, my friend. Save up your energy. Those lungs must be on their way soon.
Love you!
Deb
Hey Nancy! I'm glad your home! I know there is never a place like home:)!!
Your picture slides are wonderful! When you teach Deb you'll have to teach me too! Hope your patient I'm not the fastest learner...LOL!
I hope you rest up and enjoy the time at home with your family! I can't wait to see what you come up with next on your slide shows!
Lots of love and prayers your way my friend! Please tell Hannah how cute she is! Say hi to mom and dad too!
Love yah!
MB
Glad you made it home safe and sound. It seems crazy that you have to drive all that way and use all that energy just for one appointment! You are brave. I know what it takes to travel with all you have going and it's not easy. Kudos to you for doing it all! I hope your lab results are good and that your body is blessed with the strength to get as far as possible without the antibiotics. Be well, my friend!
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