Our trip to Pittsburgh went well. My Pulmonary Functions continue to stay at 92%. There was some concern after my bronch. about the main opening between my trach. and my lungs. That is where my new lungs were sown and the scar tissue seems to keep growing. At this point the opening has closed up 50% since transplant. Obviously, if that were to close too much, I would begin to have trouble with infection, breathing, etc. I am waiting to hear what the plan will be to deal with this, I will keep you updated.
We had two wonderful visits, Wednesday evening with our friends Scott & Christina and their 5 children, then Thursday evening with Cammi and her husband Lance. Cammi looks great and is getting better every day. She is struggling with many of the same issues I did post-transplant, so continue to keep her in your prayers.
We got home Friday afternoon and began preparations for Hannah's party. Saturday, we Trick or Treated and I dressed up and went from door to door with Hannah and her friend Taylor. I got some strange looks, but no one denied me candy. It was so much fun, quite a difference from being pushed around in my wheelchair in the cold last year.
Our Halloween/Birthday Activities: There were too many pictures to post, so I made a slideshow instead.
Hannah's party was a huge success. Scott created a haunted house in our basement and with the help of our friends Holly and Bryce, had the girls screaming all afternoon. I made a litter box cake per Hannah's request and let me tell you, it looked pretty disgusting, but tasted great (see my cooking blog for the recipe), and a witch's brew punch with a floating hand in it. Everyone seemed to have a really good time.
On Monday, Hannah brought Halloween sugar cookies to school and we invited Scott's family over to celebrate Hannah's Birthday with Chili (her request, one of the new recipes I tried a few weeks ago) and a pumpkin torte. When we fell into bed I could tell she was completely satisfied with her Birthday. Another year gone by, where did my baby go?
Yesterday we were able to all get the H1N1 vaccine, THANK YOU DR. WITTE's OFFICE!!!!!! So we should be as protected as we can be as we head into the winter months.
I am more tired than I have been since before my transplant. I will admit, I did WAY TOO MUCH!!!! It was just so thrilling to be able to give my daughter the best Birthday ever and it was SO WORTH the exhaustion I am feeling now.
Hope you all had a very happy Halloween and are preparing for Thanksgiving by treasuring and remembering all of the things you have to be thankful for!
All my love! Nancy
2 comments:
Sounds like you had a nice Halloween. . .now on to Thanksgiving plans :)
PLEASE take care of yourself.
Much luv
claire, harley, goober and moxie
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