You've Been Given the Gift of Life, Give it Back!

Welcome friends and family!

Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!

It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.

If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.

My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.

Please feel free to contact me with questions or feedback, I would love to hear from you!

I hope I can help you to experience the love God has for each and every one of us!

May God Bless You with Miracles in Your Life! Nancy


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Monday, April 21, 2008

How the List Works

I still have not been assigned a Lung Allocation Score, that cannot happen until my insurance approval comes through.

I wanted to explain the listing process to you. I know many of you have asked how it works. In the past, people were placed on the transplant list based on when they listed, not their need for lungs. The current system is much improved and takes into account three factors:

1. Blood Type (I am an O which is the most common, Rh factor does not matter)

2. Chest Size (This is determined by height and using a chest x-ray)

3. LAS (Lung Allocation Score) This is the number I will be assigned based on my medical need for a transplant. The scores range from 0 to 100, the higher the score the sooner the transplant.

According to my transplant coordinator, there doesn't appear to be anyone ahead of me on the list based on my size and blood type, so that is a good sign that transplant could happen quickly once I am assigned an LAS.

I hope that helps. I will continue to keep you posted.

4 comments:

Amy Deahr said...

Hi Nancy,
I am so glad that you had a wonderful weekend at home. I am thinking of you always! You are turely amazing! I love you!
Love,
AMy

Amy W said...

It was good to talk with you yesterday! I am glad that things are heading in the right direction. God has a way of doing that! I read your book...it's amazing! I plan on reading it again, filling in the pages, taking it slowly as it was meant. I am proud to call you friend. Thank you for allowing me to be Hannah's teacher...she's a great little girl.

Love you,
Amy

Anonymous said...

Thanks for the info on how the list works. We are keeping you in our thoughts and prayers and hope to hear good news soon.

Blomquist Blog said...

Good Morning Nancy!
I LOVED the poem that you shared with all of us. Once again, you continue to inspire others through your daily actions and your positive spirit. I am sending lots of prayers your way that you have good news to share real soon. Say hi to your family for me and give your mom a hug! I love you!

Love,

Debbie

The Miracle of Transplantation

Pause the music player before watching.