As of today, everything has gone through and I am officially on the list. Unfortunately, because of the Friday timing, we will not be able to make arrangements for oxygen and housing this weekend in Pittsburgh, so we have decided to wait until next Thursday, May 1st to re-locate. I have a follow-up doctor's appointment at UPMC that day, so that will work out well. My status on the list will be inactive until we get to Pittsburgh on Thursday, that way we won't have to worry about getting a call in the next few days that lungs are available.
I am feeling good about this decision and am glad to finally have a direction and plan. I am also happy because I will be able to spend Scott's Birthday with him this Monday.
May you all have a wonderful weekend! I send my love!
Nancy
7 comments:
Great news!
When you know it, please post the actual mailing address for your relocation in Pittsburgh. There are some of us who would like to send actual physical get well cards and care packages.
Hope to hear more great news soon!
YEAH Nancy!
I bet you feel like throwing a party just knowing you finally have a firm plan! I talked with your mom yesterday and oh boy, she is such a wonderful woman. She is just so strong and quite funny! I hope you are able to enjoy these last few days at home before this next stage in your life. You are an amazing person and I wish you the best always! Lots of prayers and love are filling the air being sent your way. I love you Nancy!
Love,
Debbie
We are praying for you and your family that you can start the next phase of your life soon. I check your blog everyday for new updates. You are a great inspiration to all you touch!
Love,
Amy Crawford
Nancy, God bless you and your family. Our 9 month old grandson has CF and is Buffalo waiting for G Tube placement next week. May your prayers of a donor come soon. I am purchasing your book. I am sure i will be read a lot and also to our grandson when he is older. many warm thoughts and prayers
Yeah Nancy!
That is wonderful news! I hope you have a wonderful week at home and a great day on Monday! You are in our thoughts and prayers always. You are so amazing!
Lots of love and hugs,
Amy Deahr
Mom told me the news this last weekend and I am thrilled that things look like they are finally coming together! The kids wanted me to tell you hello and that you are in their thoughts and prayers as you are in mine.
I will keep in touch, been kind of busy with 2 jobs and all but I can keep track of what's going on here which makes it so much easier!
Keep your head up and I will be back!
Brian
Excellent Nancy!
I'm so thankful you have this blog to keep us posted. My thoughts and prayers will be following you and your family.
Love,
Monica
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