I have a lot of updates to give you today. We returned from Pittsburgh last night. It was a good trip. We have decided that I was having a bad allergic reaction to the inhaled Fortaz antibiotic and that is what was causing me to feel so poorly last week. We have discontinued that for now and are holding on IV antibiotics to see if I will continue to feel better without breathing that in. Though my white cell count was elevated, I do not have pneumonia, thank you God!
There has still been no movement on the list. According to Dr. Pilewski, if I was 6 ft. tall I would be golden, but unfortunately, I need smaller lungs. At this point, we will not return until August, unless things change on the list.
Julie's surgery went well. She received three new organs: a stomach, pancreas, and small bowel. She was awake 5 hours after her surgery ended which is quite amazing. According to her mom she is doing well and I saw a picture of her taken yesterday.
Scott and I made our trip a celebration of our 12 year wedding anniversary which is tomorrow. We enjoyed our time alone, we haven't had much alone time in a while.
Finally, I wanted to share pictures of Hannah on her last day of school (with a brand new haircut, too!). She is now officially a 4th Grader, Oh my!
.jpg)
.jpg)
I am hoping I will have some pictures to share from the Music in the Park shortly. What a wonderful evening that was. I am not sure what the grand total raised that evening was, but it was a lot more than any of us expected. What a wonderful community we live in! More to follow on this later.
Love to you all! Nancy
3 comments:
Hi Nancy!
I am so glad that you and Scott got to spend some time together. Happy Anniversary! I still remember your beautiful wedding and being part of your special day. I thought Scott was so perfect for you and I still do!
So glad that you were able to come home as well. Thank goodness that you do not have to do the inhaled cat pee anymore! :) I hope your IV antibiotics give you an extra push and boost as you wait for your new lungs. Hang in there and know that you are very inspiring to many! I will keep your friend, Julie, in my prayers as well. I am so glad that God has given her a new chance of life and I hope she recovers nicely.
Don't ever forget how truly special you are to so many. You have touched so many peoples lives. Please know that I love you and I keep you close to my heart. All my best to you all!
Love you,
Debbie
PS Hard to believe your sweet Hannah is a 4th grader. She is beautiful and so grown up!
So glad you are home...hopefully you will feel much better without that yucky inhaled medicine.
Hannah's new haircut is VERY cute!
Happy Anniversary! Glad you were able to celebrate.
Take care!!
Hi Nancy,
Great news that you are home and congratulations on your anniversary. How wonderful that you were able to share some special time with Scott. I am coming home next week and hopefully will get to see you.
Give my best to Hannah and Scott.
Love and miss you
XOXO
Megan
Post a Comment