It is my pleasure to finally introduce you to Dr. Pilewski, the greatest doctor EVER!
I had an appointment today and everything continues to look good. I may even be able to take a quick trip home next weekend for a visit and should be able to move home in mid to late February, hooray!
My Pulmonary Function Tests continue to improve and have gone from 64% two weeks ago to 72% today. This continues to be unbelievable and miraculous, but Dr. Pilewski told me he knew I would do great. So, my parents gave me an A for my feedback from today.
I find out tomorrow what group I am in in the research study. (Pray extra hard for the medicine group!) Next week will be very busy, I have appointments with an ENT, Endocrinologist, and Gastroenterologist; and if I am in the medicine group I will have to go in daily to be administered the drug.
Dad got back safely today. I have asked him to post some of his pictures and an overview of his trip, so you can look forward to that soon.
Please take care! Nancy
8 comments:
Nancy,
I am not at all surprised at how well you are doing. You have the drive, focus, strength, and determination to see this through. You are so wonderful and inspiring. I am so happy that everything continues to look good for you. I can't believe how high your pulmonary functions are--that is amazing!
We are very thankful for Dr. Pilewski and everyone who has taken great care of you! What a wonderful medical family you have found.
A trip back home?? Wow! That would be so wonderful for you and give you that much more push to climb the rest of the mountain and get home for good!
Continue to climb that mountain! We love you all and look forward to hearing more success updates!
With love,
Debbie
BEST NEWS EVER! Oh, I hope you are home SOON - for GOOD! But a weekend will be AWESOME in the mean time. FOR SURE!
You are really ROCKING IT, Nancy. I'm so happy for you. You've been blessed with good fortune but you have also worked REALLY HARD to get STRONGER and I admire that so much! Thanks for your example.
And you're right, Dr. P. is awesome. I love his SMARTS and his devotion to his patients.
Looking forward to your dad's post on D.C.!
Hi Nancy!
You continue to amaze us with your strength and progress. Keep it going! All our positive thoughts are headed your way for the "medicine group."
Hi to your parents for us!
The Shibuya's
Gold star AND the big A+! You look like a million. So glad to put a face to your wonderful doctor. Getting home will be so positive! So happy for you.
Much luv,
claire, harley and the goob
WONDERFUL!!!!!! You look fantastic! We are so proud of you Nancy. We are sending our prayers! Keep up the good work. XXXXOOOO!!!!
Bridgette, Rob
Jill, Will, Joe, and Delaney
HOW EXCITING!!!!!!!!!!!!! Alyssa, Alexis, and I can't wait to see you! Alexis asks how you are doing and when you are coming home frequently! I'm sure Hannah is thrilled that you are getting a "weekend pass"!!
Just make sure you keep taking care of yourself and don't over do it! You look absolutely wonderful! That smile is still there and looks like a million dollars! You have the determination, Nanc...keep it up!!
Love,
Tom, Amy, Alyssa, and Alexis
THAT IS SOOOOO FANTASTIC! You are a miracle all within your little self girl. These new lungs are just a fresh coat of icing! Hang in there and keep on keepin on!
Super news!! You are doing so well and I'm sure the thought of a visit home must be so exciting! Keep up the great work. We think all of the doctors that have taken care of you are simply amazing!
Sending you lots of love and prayers,
Amy
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