You've Been Given the Gift of Life, Give it Back!

Welcome friends and family!

Thank you for visiting my blog. It documents my amazing journey from pre to post double lung transplant. I am a 37 year old mother and wife with Cystic Fibrosis who has been more greatly blessed than I could ever imagine possible!

It has been a bumpy ride, but God has given me strength, love, friendship, and, FINALLY, health. My prayers have been answered, my miracle was granted, and I want to share the joy of my new life with you.

If you are a first time visitor, please take a moment to watch The Miracle of Transplantation video below. To me, pictures speak a thousand words.

My entries begin in April of 2008 and my double lung transplant was December 10. Scroll down to my blog archive and you can read from the beginning or jump around. If you are looking for a specific topic, you can use the search engine.

Please feel free to contact me with questions or feedback, I would love to hear from you!

I hope I can help you to experience the love God has for each and every one of us!

May God Bless You with Miracles in Your Life! Nancy


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Thursday, October 23, 2008

The Medivent RTX

Hello!

My friend Becky had asked about the RTX (that is the external lung machine I talked about a few weeks ago) and whether or not it has been FDA approved yet. I guess with all of the craziness of last weekend, I never got to report that it has been FDA approved. Now the issue will be insurance and convincing insurance to cover it. I am not sure the cost, but I know my VEST which we got 9 years ago cost $16,000, so I can only imagine how much this may be.

I guess part of me is hoping I will get new lungs before I need to consider this, but I know Dr. Cronin and Dr. Pilewski are working on getting one for me and with the way I have been feeling, I would certainly welcome it!

1 comment:

Becky said...

Yes yes, new lungs would be MUCH more welcomed. But while waiting it sure would be great to breath a little easier!

The Miracle of Transplantation

Pause the music player before watching.